CHOC is the largest Brineura infusion center in the country and the second largest in the world to treat Batten disease, a rare neurological condition that affects children.
Dr. Joffre Olaya
Life was proceeding right on schedule for self-described “drama kid” Genevieve Masson. The 16-year-old, who goes by “Geni,” went to class, hung out with friends and spent time rehearsing musical theater at her high school. “It was really a normal, not-so-exciting life,” she says. But two years ago, when Geni was 14, something changed. A […]
Dr. Joffre Olaya, a CHOC pediatric neurosurgeon, was recently named one of Orange County’s 25 Most Influential by Modern Luxury magazine. In this Q&A, he shares more about what he’s learned from 2020, the privilege of caring for a vulnerable population, and his work with as medical advisory chair for Make-A-Wish Orange County and the […]
Every morning when she awakes, Sydney Amato begins her daily battle with her body. If she’s lucky, the 16-year-old will have gotten a handful of hours of uninterrupted sleep – dreaming, perhaps, of doing what most healthy kids her age take for granted: Hanging out with friends. Going to school. Learning to drive. Because of […]
By Celeste P., mom of CHOC patient Camila When my daughter Camila was going through epilepsy surgery, I read stories about other kids’ success, and gleaned hope from them. As much as I learned from her doctors and nurses, it was helpful to read a parent’s perspective. I now share our journey in the hopes […]
Brodie’s cancer survivor party was a chance to celebrate the completion of his cancer treatment by gathering his family and friends for an epic Nerf battle. Wanting to give back to other CHOC patients, the twelve-year-old boy turned his celebration into a fundraiser. Brodie used the proceeds to buy Legos, journals, games—all his favorite things […]
Despite her happy disposition, Rylee had a big roadblock: frequent disruptive seizures. Six months past her epilepsy surgery, she hasn’t had a single seizure.